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WBEN NewsRadio 930>Audio & Video on Demand>>Mastectomy Patients' Stories - Madeleine Nagy & Anne Courtney; I

Mastectomy Patients' Stories - Madeleine Nagy & Anne Courtney; I

May 15, 2013|

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Little crowded in our studio this morning we have three B in studio guest doctor -- Kumar is with those from Roswell Park Cancer Institute. As we delve a little more deeply into the Angelina Jolie. A stunning and opens yesterday about -- double mastectomy. Two other guests to we have a nurse from Roswell park cancer institute and Courtney who herself. Had the breast cancer and Matalin Nagy. And -- I'm going to ask you to speak first because. As you were introduced to us this morning. It seems you made the decision on the parallels. What Angelina Jolie has just done tellers and our listeners. About your decision. Yes I -- you know breast cancer and ovarian cancer Ryan's. Grant that item both sides of my handling. It started with my great grandmother my -- both of my grandmother's on both -- my mother had breast cancer twice. And my aunt and now my sister has ovarian cancer so even before I got to the genetic tests -- and I had you know. The pretty much made the decision and that I was going to have the elective surgery. I'm its you'd have my breasts removed. A three year old twins and you know we need kicked in my family to cancers with cancer -- Is it our mid thirties to late thirties and that's about where I am right now -- my age. So you know that that you know it was important for me to be able to see my children. You know grow and you know it you know -- see their grandchildren. So I was I I always say that I was not terribly surprised when I got my test results from the genetic test dean. I tested positive for both of the genes. And so that decision you know those results really solidified. That it was important for me to not just have the double mastectomy but I also have my ovaries removed. And you know it's. It was a long process and I just had it about six weeks ago so I'm still. In that you know the reconstruction and their -- is it's my -- recovery. I -- and there are good days and there are bad days by every single day I would do it over again. I'm and I think like the doctor side you know it's not the right decision for everybody to go you know I had this surgery. But but I always tell people when I talk about it. We have the options now you know even a handful of years ago it was to wait to see gain you know -- did not have the ability to be trapped Pratt did you didn't have. You know women didn't have the ability to have this type stand -- say. OK two I want to do surveillance and in all the different surveillance options that you have orgy I want to you have. You know the surgery to you have a peace of mind TO you know have a piece of my for my children today we have that because that the pioneers how out of last. And the research that has -- and and that's and meeting -- that we had. An -- and it is here -- in Courtney is a nurse -- runs well with breast cancer tell us your story and. I found a lump iron self examination after having some pain and my brass and it around Thanksgiving time 2008. After scene the surgeons at Russell park I had a lumpectomy. Before I had -- a -- that's me I did do some genetic testing. So shortly after my surgery. We found out that I do have the practical and Sheen so I did go forward with chemotherapy. And once chemotherapy was Don. IA. Elected to have the both breasts removed reconstruction and my ovaries removed because of the high risk of recurrence or developing. A second breast cancer. Or ovarian cancer. They both of you can weigh in on this question a man maybe you can go first and Matalin you can go to second. How important. How important was. Family support. For the decision -- -- -- was everything. My mom came with me check every point and I had to while I had cancer. My sisters were there for me my brother was there for me my dad. My coworkers at Roswell where an amazing support. I had so many people rooting for me and they understood the need for -- mean. To have peace of mind and to be able to sleep that night to have access. Radical surgery. And they support me the whole way and I understand my choice. Hey -- I agree I think is that you know it is a radical surgery and you know when you're talking about it you're talking about the heart of you know what a woman you know it's it's sometimes identifies as you know when -- the removal of your -- and I think having the support. You know your significant others in your family are just a means -- and I know that I could not have done it without the support my husband and my friends and family. Were you frightened. I you know like I I wasn't frightened because they kept remembering -- -- I exchange for my three children. I -- I do you have to say that the first time that it. When the -- removed and the bandages. Were removed. You know it was not until that moment that IA felt as I was gonna be self conscious. Or are. It's a lack of self assurance that the first time that I saw myself after the surgery. You know I'm not gonna lie -- did have a little meltdown and I ate my husband was the line that put it all back purse -- dead. That you know light. Deep down at data you know that your your privacy joke is not what makes you -- And I think that that's an important thing and I imagine that many women. When thinking about this after they get their test results are thinking I'm not can do this because I'm gonna be left of the -- and I -- and -- that could not be further from the case you know happiness apart it's important. It's just such an important discussions went into such a commercial from Roswell park as well. Brussels has a high risk program. For cases like this yes that's exactly right we have both a breast and an ovarian -- program. Four patients at higher risk for developing. Either breast or ovarian or both of them as these -- Ladies have described. It's -- breast cancer risk assessment and prevention program and it's designed especially for women without cancer. Who have a higher risk of developing breast cancer and within this program. You know a lot of women come in and they completely overestimate their risk. You can imagine a lot of women come in and they underestimate their risk of having. Genetic predisposition or higher risk of developing breast cancer so that the whole purpose of this program Israeli TU. To learn about your personal your family your genetic factors put that all together -- Quantify your rest and once we can plant fire risk will find that it either is higher or lower. -- and what you expected and then manage that risk according.

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